Category Archives: SI Joint Pain

Feeling Awesome by Work Out and Crappy by Anything Else

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  Say hello to work out Meghan. Running (well, “running” but it’s not walking, so who cares how many miles per hour it is?) with the breeze blowing through my hair, one foot after the other, busting out an uphill gain (Ok, so it’s only 50 feet, who cares?) while I’m doing a little dance move with my hands to Pink’s “Raise Your Glass.” Perfect. Seamless. True, legs are a little sore, calves still haven’t completely adjusted to the new vibram five fingers or the torturous cold air 4 mile jog that I am putting it through. Yes, my knees are a little rickety and at a time or two I slide ever so gracefully on a small patch of black ice. Yes I am absolutely covered in sweat from head to foot because for some unknown reason, I perspire 1000000000% more than the average human being.  Yes, my earbuds slide out every few minutes because apparently my ear holes aren’t properly formed for the latest Sony bud covers. Yes, my spandex pants are a little too tight, thus accentuating parts of me that I’d like a little more toned. Yes, I’m breathing through my mouth, gently wiping slobber out of the corners of my mouth and off my cheeks. Yes, I MAY EVEN BE mouthing or heaven help us, SINGING OUT LOUD to the song on my shuffle. But, don’t I look happy? I am in my element. I am doing it. I have AS and I’m out of shape and I’m running. And I like it. I even got Andrew out there running with me and putting up with my crazy routes. My butt feels NO pain. Take that SI joints, I have found a way to mute you. Take it! My lower back feels like I have brand new vertebrae of flexible steel. I don’t know if it’s possible, but just imagine it is. My muscles are relaxed and I feel like I could fly.

That’s work out Meghan. Now meet Meghan at any second of the day when she is not working out.

Meghan is broken. Meghan is in pain. Meghan is exhausted. Meghan is ready to throw in the towel. Imagine your neck and back and butt being steam rolled, spat on, and steam rolled again. That is Meghan on no Enbrel and not in work out mode. It could be an hour after working out, it could be in the morning before working out, it could be on a “rest” day. This Meghan is evil. She feels like crap, she is groggy. She feels like she has been up for 5 days straight. She wants a vacation.

 

How is it possible to be both Meghans? I’m not sure myself, but trust me, I know it is! I don’t get it. It exhausts me to start thinking about it (not currently working out). I try to figure out how I can feel so wonderful exerting energy that quite frankly, I don’t even know that I have in me. Yesterday, I did NOT want to get up. I knew we were supposed to run 4 miles and I wanted to run 4 miles but I didn’t want to get up. I hit snooze a couple times. Andrew got up and got ready and then came back into the bedroom. It took everything I had in me to get out of bed. Once I was outside, I felt a little more awake but really sore. I remember thinking to myself, there’s no way I’m going to be able to run 4 miles. But you know what? I did… and I’m not sure how- but I do know that during those 4 miles I felt invincible. So I guess my question is, is it possible to work out all day? Because if I could, I would. If that’s the only way to get relief, I am. in.

Next Monday, I have an appointment with my Rheumy (FINALLY!). I’m really hoping that he gives me the go-ahead to get back on Enbrel. Please cross your fingers– I think if I can go back on, I will start to feel 1000000% better!

 

Fa-La-La

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Merry Christmas, everyone! It’s hard to believe that yesterday was Christmas. Where does the time go? I hope you all had a wonderful wonderful holiday and got a chance to spend some time with family. Andrew, Franklin and I were lucky enough to spend 3 whole days and part of two days at my parent’s house in Pennsylvania.  We were overwhelmed by all of the awesome gifts that we received from our two families and having the chance to spend time with my grandmother, mom, dad, and brother (and Andrew and Franklin of course) was just wonderful. Now we’re back in DC, settling in and trying to get ready for work this week (YUCK!). This weekend we’ll be heading off to OCMD to ring in the new year and a whole host of new resolutions… to be shared (perhaps?) at a later date. For now we’ll focus on putting our pasta maker to use!

I wanted to follow up on my last post (wow 1/2 month ago, I’m sorry!) In my last post about the implications of a tick on autoimmune diseases, I mentioned that my regular doctor told me that my lyme’s disease test came back positive. I then went off to visit an infectious disease doctor. The appointment went well- I spoke with both a doctor and an assistance who took my vitals, chatted with me about my history and told me where we were going from there. Basically they wanted to re-run blood work to confirm lyme’s and test for mono, toxy something or other which is caused by eating undercooked meat or soil, and a host of other things. I begrudgingly agreed. What’s another 3 or 4 tubes of blood… so off I went with a chat from the infectious doctor that he’d call me back in a week.

About a week later I received a call from the assistant I had met with- she was really nice and she calmly explained to me that my lyme’s disease test came back positive again as did the mono test. Thus, she said, I’m really sorry- you have lyme’s and mono. Umm what? Where did that come from? At least it explains the tiredness and the neck stiffness and the headaches and what not. They prescribed another 2 weeks of doxycicline (so I have a month prescription now) and told me to take it easy and that the mono would go away on its own.

The upside of this is that I have a diagnosis and I’m on medication. The downside of this is that for the whole time that I am on doxy, I can’t take enbrel… so my back and my SI joints have been acting up A LOT. I’m just hoping that now that it’s been a little over two weeks, my Rheumy will give me the go-ahead to go back on Enbrel so I can get back to feeling 100%. As I’ve mentioned in previous posts, it’s been a rough Fall/Winter of 2011, but we are happy and ready for 2012- we both feel as though there are good things to come!!!!

Today I Ran a Half Mile

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Yes, you read correctly. Today, I ran one half mile. No, it’s not as glorious as a 5K, 10K, half marathon, or heaven forbid, a full marathon, but it was progress and I’ll take it. At my one month mark of being diagnosed with Ankylosing Spondylitis, I proclaimed that I will be running the Rock N Roll Half Marathon next February in Pasadena, CA. Well, I have to start somewhere and today, that start was one half a mile.

For those of you who have ever completed a marathon, first off props to you- it is a great feeling to be in that special group of 26.2-ers. Someday, perhaps I will get back there again. Regardless, remember that feeling you get around oh mile 21? That oh my god, I am literally dieing there is no way I can put my left foot in front of my right foot again- every muscle is tearing and my bones are gone feeling? Well, that is what I had during my one half mile sojourn today. Now, don’t get me wrong, part of that is due to the fact that I haven’t trained in months. The other part of course, is my near and dear friend, AS. But such is life.

Tonight I lay in my bed with aching wrists, ankles, knees, hips, heels and a lower back. My body feels like I was accosted by a group of people with baseball bats. I voiced to Andrew that I hate the feeling of feeling like crap and I feel so frustrated sometimes and just like my body is completely giving up on life. And yet, as I sit here typing this post, I can’t help but smile knowing that today, not only did I get to go on a 7 mile walk with the love of my life and our bestest dog, Franklin, but I actually ran (ok, jogged, whatever) a half a mile.

I am well on my way. Today was a great Fall day and I wouldn’t have changed it for anything.